July 2013 - Cole's Geneticist Appointment

We went to see Dr. Carey, the geneticist at Primary Children's Medical Center, this month. We weren't really sure what to expect at this appointment and were back and forth about going. We decided to go and came up with a list of questions about DiGeorge Syndrome. When we got there, they took a picture of Cole and a family picture. They did a physical evaluation and talked to us for about an hour. We didn't really learn anything new but we are hoping that they will be able to help us get Cole into speech therapy. He talks fairly well, but sometimes when he is really excited he is pretty hard to understand. The school district says he doesn't qualify for therapy and our insurance won't cover it because it is considered a developmental delay. We are going back down to SLC the first week of September to do a speech evaluation with a therapist who has seen a lot of DiGeorge kids. Dr. Carey will also put in his report that he would strongly recommend that Cole gets therapy through the school due to the majority of DiGeorge kids having speech issues. I hope that this will help us get somewhere. Dr. Carey also wants to have Cole's kidneys checked to make sure everything is going well with them. I guess that's something common in DiGeorge, too. 

Connor really liked that he could turn the water on with his feet but got frustrated because he wasn't tall enough to watch the water at the same time.

We had to wait for quite a while for Dr. Carey to come in. We kept the boys entertained by sticking their heads in the sink. They said they were 'washing their hair.' We also played a lot of Simon Says, with the boys singing songs. putting stickers on different parts of their body, standing on one foot, jumping, sticking out their tongues, giving each other hugs, and stuff like that. I can't believe that I didn't think to play this game at doctor offices earlier! It's been a life saver the last couple of times.

Since our four year anniversary was last week when I was in Provo, we celebrated by going to Rodizio in Trolley Square. They bring around big skewers of meat to each table, and if you put the green side up on the little wooden thing that is on your table, they stop by and offer you some. They have lots of different grilled meat, pineapple, and tomatoes. They also have a salad bar with all sorts of different things.  I knew how much Chris was going to love it here.This was his first time and he didn't want to leave. Connor was content moving the appetizers from plate to play with his tongs. They served breaded, fried bananas. They were pretty good!